May 22 — Annual Pulmonology appointment, X-ray shows a mass, weight
May 29 — Thoracentesis – almost 2L fluid removed & biopsies
June 5 — NSCLC Adenocarcinoma diagnosis, inoperable
June 14 — PET Scan and Brain MRI show: metastasis to brain and bones, Stage 4, weight
July 10 — Thoracentesis – 1.8L drained
July 18 — KEYTRUDA #1, 30 minutes, every three weeks
July 31 — Thoracentesis – 2L/5lbs fluid removed
August 8 — KEYTRUDA #2 (3 weeks)
August 8 — weight 199
August 13 — PleaurX Catheter Installed, 1.8 L removed
August 15 — 325ml removed
August 17 — 400 ml removed
August 19 — 350 ml removed
August 21 — 425 ml removed
August 23 — 550 ml removed, catheter leaking around the tube at insertion point
August 24 — 600 ml removed, still leaking
August 25 — 600 ml removed, still leaking
August 26 — 800 ml removed, still leaking, but only a little
August 27 — 600 ml removed, small leakage
August 28 — 300 ml removed, no leakage, but skin breaking down under the taped areas
August 29 —KEYTRUDA #3 (6 weeks), too tired to drain, CT Scan shows: a little swelling, no new spots, lymph node smaller
August 30 — 600 ml removed, leaking again
August 31 — 600 ml removed, very wet dressings, still leaking
September 1 — 550 ml removed, damp dressing
September 2 — 600 ml removed, just barely damp dressing
September 3 — 925 ml removed, damp dressing, lost 2 pounds on home scales, 187lbs.
September 4 — 650ml, dry dressing, Started Appetite Stimulant and steroid!
September 5 — skipped today because supplies haven’t arrived yet.
September 6 — 675 ml removed, a small piece of tissue came out too.
September 7 — 550 ml removed today
September 8 — 675 ml drained today. Beginning to take more Advil 3-4 times a day for shoulder pain.
September 9 — 674 ml drained
September 10 — 675 ml drained
September 11 — 650 ml drained
September 12 — 675 ml drawn off
September 13 — 625 ml fluid removed
September 14 — 625 ml removed
September 15 — 650 ml removed – Best Day in a long time!
.September 16 — 700 ml drained, another Pleurex bottle with no vacuum on it.
September 17 — 625 ml drawn off
September 18 — 600 ml drawn off
September 19 — KEYTRUDA #4 (9 weeks) Drained 550 ml.
September 20 — drained 600 ml and stopped early
September 21 — Drained 725 ml. Very dark in color and with small chunks
September 22 — 600 ml drained. Still very dark. 4 months after mass spotted
September 23 — 475 drained, orangey in color. Drained earlier today.
September 24 — 600 ml drained
September 25 — 725 ml drawn off
September 26 — 700 ml drawn off
September 27 — 625 drained
September 28 — 650 drained.
September 29 — Drained 600 ml today.
September 30 — Only drained 400 ml today!
October 1 — 725 ml drained
October 2 — 700 ml drained,
October 3 — drained 650 ml,
October 4 — drained 675 ml,
October 5 — drained 700 ml
October 6 — drained 350 ml. And it stopped with an extreme “pinch”.
October 7 — drained 500 ml
October 8 — drained 550 ml
October 9 — drained 600 ml
October 10 — 550 ml
October 11 — 725 ml
October 12 — 600 ml
October 13 — 700 ml
October 14 — 625 ml
October 15 — drained 825 ml (later in the day); Blood Transfusion– 2 units
October 16 — drained 650 ml
October 17 — drained 625 ml
October 18 — drained 575 ml
October 19 — drained 750 ml
October 20 — drained 625 ml
October 21 — drained 650 ml
October 22 — drained 650 ml,
October 22 — 5 months after mass spotted
October 23 — drained 625 ml
October 24 — KEYTRUDA #5 treatment, 1st Iron Infusion #1 and drained 750 ml.
October 25 — drained 750 ml
October 26 — 650 ml drained
October 27 — drained 725 ml
October 28 — drained 700 ml
October 29 — drained ?ml
October 30 — drained ?ml
October 31 — drained 600 ml, Second Iron Infusion
November 1 — drained 675 ml
November 2 — forgot to write it down
November 3 — 650 ml drained
November 4 — 600 ml drained
November 5 — Admit to hospital, 400 ml drained while laying back, not sitting up straight.
November 6 — in hospital, 850 drained while sitting up. They also drained 800 ml from the left side.
November 7 — in hospital, 600 drained while sitting up.
November 8 — drained 775 ml, after returning home from the hospital Hospital discharge.
November 9 — 675 ml. drained
November 10 — Drained 700 ml.
November 11 — drained 700 m
November 12 — drained 675 ml
November 13 — drained 550 ml (only had a small bottle)
November 14 — Oncology appointment today. Drained 750
November 15 — Drained 625ml
November 16 — Drained 650 ml
November 17 — Drained 575 ml
November 18 — 700 ml Paracentesis drained 3.5+ Liters out of his belly — 1 gallon – 9 pounds of fluid
November 19 – 23 Drained about 6o0 -750 ml everyday.
November 22 — 6 months after mass spotted
November 24 — drained 600 ml
November 25 — drained 700 ml
November 26 — 600 ml drained
November 27 — 675 ml drained from chest & 2.7 L drained from Paracentesis at hospital
November 28 — Happy Birthday Henry & Happy Thanksgiving! drained 700 ml
November 30 — drained 1L (noon) Appointment with Pulmonologist Dr Mathew C. He suggested that we try draining chest every other day. Maybe there is a 650ml limit to what will be held in chest. At this point the tissue will not ever connect. You are going to have to keep draining.
December 2 — drained 1L (7:30 am)
December 4 — drained 1.1 L
December 5 — 800 ml
December 6 — drained 625 ml
December 8 — 10000 ml
December 10 — 950 ml
December 11 — Start BRAF Targeted Chemo Drugs!!!
December 12 — 1000ml
December 14 — 950 ml removed
December 15 — Went to have a thoracentesis, they said that there was not enough fluid to do one.
December 16 — 1000 ml removed from chest
December 18 — 1050 ml removed from chest
December 19 — 950 ml removed from chest
December 21 — drained 700 ml
December 22 — 7 months after mass spotted
December 22 — drained 1000 ml
December 24 — Drained 750 ml
December 25 — Drained 1050 ml
December 26 — drained 750 ml
December 28 — Drained 550 ml ( used a small bottle by accident) Have decided to go back to once a day, because waiting just lats more fluid build up.
December 29 — drained 900ml
December 30 — drained 1L
December 31 — drained 850 ml some little chunks in it
January 1 — drained 1050ml
January 2 — 950 ml drained
January 3 — 1050 ml drained
January 5 — 1050 ml drained
January 7 — 950 ml drained
.
.
.
January 22 — 8 months after mass spotted
February 22 — 9 months after mass spotted