Logging might be the most important tool in your bag, the Keytruda is in the doctor’s bag. I took extensive notes at the first few doctor visits, both pulmonology and oncology. They were very helpful in remembering and talking about his cancer. I was able to hear and take notes while Henry listened and processed emotionally. He would be thinking of the next important question to ask and I was writing down what the doctor said. I also took a list of questions to all of those visits. Once I started writing this blog and the treatment started, I didn’t keep the notes more than a day or so. That was a mistake. So I think I am going to have to add a new page to document doctor visits, hospital visits and treatments.
We remember things differently, and he gets really mad at me sometimes for disagreeing with him, so I just agree and go on. So a bit of advise to anyone going through this – get a journal and write everything down.